For most CFers, we just want to be “normal” but sometimes you must be careful what you wish for. I was unprepared for adulthood. Once comfortable with the idea of dying young, I now struggle to adapt ...

Using social media helps me cope with raising a child with cystic fibrosis, but I have to remember that it's not just my story I'm sharing. Here's how I make sure I share the right parts of my son's ...

Growing up as someone with cystic fibrosis, I obviously had some health issues, but I was able to play sports and do many things young boys like to do. I still enjoy playing sports and being active as ...

My journey with cystic fibrosis has been difficult, to say the least. CF was first brought into the conversation when I was 16 years old at Children's Memorial Hospital here in Chicago. I underwent ...

I’m going to preface this article by saying I’m probably not the best person in the world to give anyone relationship advice. However, I do feel like a lot of other people out there — whether you have ...

Childhood memories can often resemble a calendar filled with birthdays and holidays. Growing up with cystic fibrosis makes childhood look more like a timeline that is marked by doctor visits and ...

When our son, Dean, was diagnosed with cystic fibrosis as a newborn, my husband and I were beyond overwhelmed, as most new parents would be. Once we began to wrap our heads around things, we started ...

When your back is against the wall and there is nothing you can do except to hope and pray for a miracle, you enter a psychedelic state of mind. You become at peace with the inevitable. You begin to ...

Living rurally with cystic fibrosis means every in-person appointment becomes a major undertaking of time, money, and energy. Telehealth once eased these burdens by connecting me to my care team ...

From ages 5 to 20 I spent my summers at a small wilderness overnight camp in New Hampshire, and now I'm beginning to recognize the habits it instilled in me. From being open and comfortable talking ...

Before I was diagnosed with cystic fibrosis and while recovering from surgery for placement of a colostomy bag, I became very ill with influenza (or maybe it was COVID-19; we'll never know for sure).

When we think of the word family, we feel that warm and fuzzy feeling inside. We ordinarily think of our parents, maybe our siblings, grandparents, aunts ... but is that the entirety of our family?